Real Life: Living with IBS

I first started experiencing symptoms when I was in secondary school. Sometimes when I ate, I would need to go to the toilet almost immediately. As a result, I experienced anxiety, and this would cause a vicious circle with my IBS symptoms. 

I went through years of suffering with anxiety. I suffered with IBS-D and, at the time, I had no idea what my triggers were. I felt anxious leaving the house, even for short journeys, and would only want to go places if I was the one able to drive. I would take toilet paper in my car for a ‘just in case’, and if there was traffic, my anxiety would be at an all-time high. 

I never wanted to travel far, and if I was going out to eat, I wanted to come straight home after, as I didn’t know how my stomach would react. The thought of getting on a plane would leave me in tears. I couldn’t get a job where I would need to travel via train as I then wouldn’t have my security blanket that was my car. It ended up impacting my everyday life. 

I can’t remember my exact age, just that it was after secondary school. I wasn’t offered any support. I was told I had IBS, and nothing could be done. A few years later, I paid for private healthcare and had some tests done and was told I have severe IBS. I then found out about the Low FODMAP Diet. 

My symptoms are different now that I am managing my IBS through diet and looking after my mental health as best as I can. I do still suffer with bloating. However, I have fewer ‘bad’ flare-ups than in the past. I now only suffer with IBS-D around a handful of times a year. Before managing my IBS, this would be more or less weekly. It would cause awful cramps in my stomach after a meal. I would sweat because of the pain and not be able to move until my cramps eased, (to come back minutes after). I would then need to go to the toilet and would suffer with diarrhoea. 

Years ago, I started The Low FODMAP Diet (an elimination diet) to try to learn which foods I can tolerate, and which trigger my IBS symptoms. It really worked for me and I’m now able to manage my IBS, to a certain extent, through my diet. The brain/gut axis is also a massive factor for IBS. I try to look after my mental health as best I can, although it’s not always easy. I exercise, get out for fresh air and maintain a balanced diet. 

Luckily for me, I’m aware of the majority of my triggers. I now have a much better understanding of what I can and can’t tolerate, as well as portion sizes. A lot of foods are how much I eat and eating in moderation. I stay away from onion. My stomach doesn’t like certain sugars, (some fructose and some sweeteners). I can’t tolerate gluten in cereals. While I can tolerate some foods in small quantities, when eaten together, they’re a no-go. I feel like with IBS, you are constantly learning about yourself. 

Over the years my anxiety calmed down and I learned to manage my IBS through diet. Anxiety was a massive trigger for my IBS, so once I learned to manage my symptoms through my diet, my anxiety eased. One of the other things that really helped me was talking!

When I was younger, I felt very alone and embarrassed about what I was going through. I didn’t know anyone else suffering the way I was. As I felt alone, I set up an Instagram account called @fitnessfodmap_ which was initially to help myself, to find people also suffering. Through my Instagram, I realised just how many people suffer, not just with their IBS, but mentally. I’ve made good friends through my account and have now built my Instagram to help others. 

Before the pandemic hit, I worked in London. Now my IBS is under control, I don’t suffer like I used to with travel. I no longer get anxious when taking a flight and feel proud of myself that I’ve been able to fly long haul, when a short two-hour flight trip used to fill me with dread. 

When eating out at restaurants, I will call beforehand to ensure they can cater for my intolerances. I also make family and friends aware if I’m invited over for food. I’ve learned it’s nothing to be embarrassed about, and not to feel like it’s an inconvenience. I now talk about my IBS, as opposed to hiding it. 
 

At times of high stress, I experienced prolonged bloating. However, I’m aware that stress is a symptom and that with the pandemic it was normal to feel anxious. I tried to use some lockdown days to my advantage by re-introducing certain foods. I knew I didn’t have to leave the house, so found this as the perfect time to try something new. 

Talk! It’s so important to not feel you are alone. Visit your GP and ask for a referral to a dietitian so they can help you with the best ways of managing your IBS. Look after your mental health, find what makes you feel at ease and join The IBS Network for support.